Living with Functional Neurological Disorder

For years, Stephanie Russel-Farnham experienced seizures, limb weakness, and pain before finally receiving a diagnosis of functional neurological disorder (FND). Her experience is shared by many; an estimated 21,500 Australians lived with FND in 2024 according to the Australian Institute of Health and Welfare.

"Receiving a diagnosis after years of uncertainty brought relief and made me feel less alone," said Ms. Russel-Farnham.

What is Functional Neurological Disorder?

FND involves disrupted signals between the brain and different parts of the body. Symptoms can vary widely and include paralysis, functional seizures, and movement difficulties.

The Patient Journey

Stephanie Russel-Farnham stated she had hundreds of seizures over 15 years before receiving her diagnosis. She noted that many medical professionals remain unfamiliar with the condition.

Majella Brasseaux reported symptoms including tremors, pain, and fatigue since her early 20s. She was diagnosed with rheumatoid arthritis and myasthenia gravis before receiving her FND diagnosis in her 50s.

"I am not the same person I used to be and I experience daily pain," Ms. Brasseaux stated.

The Medical Perspective

Accessing neurologists can be difficult for patients, according to Neuroscience Research Australia associate professor Emma Devenney. She noted that because symptoms can resemble stroke or epilepsy, accurate diagnosis is often delayed.

Katherine Gill, president of FND Australia Support Services, emphasized the importance of early intervention.

"Early intervention is important to prevent the condition from becoming chronic and severe," Ms. Gill said. She added that many health professionals complete their degrees without learning about FND.

The Path Forward

Dr. Devenney said FND is emerging as a field of interest but requires more funding for clinical networks and education to improve patient outcomes and professional understanding.