Groundbreaking MND Research Launches in Toowoomba
A new research trial in Toowoomba is set to revolutionize how doctors detect and monitor Motor Neurone Disease (MND), thanks to a state-first piece of technology and significant community fundraising.
A Disease That Robs Independence
For local resident Natalie Verdouw, living with MND is a daily battle against a disease she describes as causing the loss of independence and dignity.
"This trial gives us access to information that could offer real hope for future patients."
The Technology: A $175,000 "First" for Queensland
Neurologist Ehsan Shandiz will lead the study using a transcranial magnetic stimulation (TMS) machine. This device measures changes in motor neurone function, allowing for far more precise detection and monitoring of the disease's progression.
- The machine is the first of its kind for neurology research in Queensland.
- It officially establishes Toowoomba as a site for functional motor system research.
- The cost of the machine: $175,000.
Community Spirit Funds the Future
The technology was entirely funded by local community efforts. A "long lunch" event organized by the Nerve Connection Foundation successfully raised $170,000 to cover the cost.
Filling a Critical Gap
University of Queensland neurologist Robert Henderson highlighted the importance of the research, noting it directly addresses a gap in the ability to assess upper motor neurons.
Dr. Shandiz stated, "This research aims to provide a better understanding of the disorder, which may eventually lead to treatment."
What Happens Next
Researchers will now recruit participants—including people without MND—for a longitudinal study designed to track changes over time.
Stories of Perseverance
The announcement resonated deeply with local families affected by neuromuscular diseases.
- Matt Butler, who has limb-girdle muscular dystrophy and is currently in a clinical trial, stressed the vital importance of continued fundraising for research.
- Amelia Bailey, whose father Lex Bailey died of MND, shared his legacy: "His goal was to ensure that others with MND do not face this disease alone."